| Type | Journal Article |
|---|---|
| Author | Maria E Bailey |
| Author | Sue Moran |
| Author | Margaret M Graham |
| Abstract | This study aims to describe nurses' experiences of delivering spiritual support in a palliative care setting in the Republic of Ireland. The authors conducted semi-structured interviews with 22 nurses working in the area of specialist palliative care. A content analysis of the transcriptions revealed five sub-themes: understanding spirituality; the art of nursing in spiritual care; education and learning; the challenge of spiritual caring; and the dimensions of time. The resulting creation of a spiritual tapestry provided an overall theme. Nurses in this study were spiritually self-aware and placed a high value on the spiritual element of their caring role. Nurses described their individual understanding of spirituality and discussed how they recognized and addressed a patient's spiritual needs. Time was described as essential to the provision of spiritual support and appeared to be a significant resource challenge to the provision of spiritual care. The challenges of assessing spiritual needs and measuring outcomes of care were also reported. Participants in this study described the creation of a spiritual tapestry that 'weaves' together care and compassion with skills and knowledge in their nursing practice. |
| Publication | International Journal of Palliative Nursing |
| Volume | 15 |
| Issue | 1 |
| Pages | 42-48 |
| Date | Jan 2009 |
| Journal Abbr | Int J Palliat Nurs |
| ISSN | 1357-6321 |
| Short Title | Creating a spiritual tapestry |
| Accessed | Tue Feb 22 19:47:34 2011 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 19234430 |
| Date Added | Thu Sep 29 09:07:00 2011 |
| Modified | Thu Sep 29 09:07:00 2011 |
| Type | Journal Article |
|---|---|
| Author | Karen Bell |
| Author | Nancy Boutin |
| Abstract | Objectives 1. Define story-teaching, distinguish it from story telling, describe benefits identified by research in education and psychology sciences, and demonstrate applicability in palliative and end-of-life care. 2. Describe and demonstrate story-teaching methodology, applications, and event triggers for patients and families, students and practitioners new to palliative and end-of-life care, and the general public. 3. Develop attendees story-teaching skills through hands-on exercises, and provide resources for attendees to teach this methodology to colleagues not in attendance. From the caves at Lascaux to Grimm's fairy tales and beyond, humans have used story to share hard-earned experience and shorten learning curves for other members of the tribe. Experts claim the human brain is hardwired to receive story and data shows that information conveyed through story is understood and retained at higher rates than when the same information is delivered “bare.” Data also demonstrates that under optimal circumstances patients/families typically retain only 40% of information shared by healthcare providers. As the amount of information increases if the news is unfavorable, and if the patient is ill or on medication, memory and understanding are further impaired. Research from psychology and education sciences shows that story teaching—true story illustrating fact—enhances learning, fosters critical and creative thinking, and improves problem-solving skills. Story teaching is especially effective for those who have experienced surprises or expectation failures and need to reshape goals and expectations—common experiences for patients/families at end of life. It's recognized as a non-threatening way to introduce learning when anxiety compromises comprehension and recall. It brings abstract concepts to life, while inviting the listener to apply his or her values to interpret meaning. In classrooms and public-policy dialogue, true story combined with data enhances recall and fosters empathy. It creates interest and provides cohesion of facts, while conveying nuance and complexity. Like any intervention, story teaching must be goal-specific and apply a methodology to achieve efficacy. This session will share the foundations of effective story teaching, engage participants in active learning to enhance story-teaching skills, and provide tools to teach this technique to colleagues in all disciplines. Palliative care physician Nancy Boutin holds an MFA in Creative Writing and is managing editor of the Los Angeles Literary Review. Hospice and palliative care RN Karen Whitley Bell authored Living at the End of Life, a resource employing story-teaching technique. |
| Publication | Journal of Pain and Symptom Management |
| Volume | 41 |
| Issue | 1 |
| Pages | 269-270 |
| Date | January 2011 |
| DOI | 10.1016/j.jpainsymman.2010.10.176 |
| ISSN | 0885-3924 |
| Short Title | Help Me Understand |
| Accessed | Tue Feb 15 19:01:08 2011 |
| Library Catalog | ScienceDirect |
| Date Added | Thu Sep 29 08:57:52 2011 |
| Modified | Thu Sep 29 08:57:52 2011 |
| Type | Journal Article |
|---|---|
| Author | Dana Bjarnason |
| Abstract | The influence of religious beliefs and practices at the end of life is underinvestigated. Given nursing's advocacy role and the intimate and personal nature of the dimensions of religiosity and the end of life, exploring the multidimensional interplay of religiosity and end-of-life care is a significant aspect of the nurse-patient relationship and must be better understood. The question that must be faced is whether nurses' own belief systems impinge on or influence patient care, especially for patients who are at the end of life. When nurses understand their own beliefs and respect the religious practices and needs of patients and their families, it deepens the humanistic dimensions of the nurse-patient relationship. |
| Publication | The Nursing Clinics of North America |
| Volume | 44 |
| Issue | 4 |
| Pages | 517-525 |
| Date | Dec 2009 |
| Journal Abbr | Nurs. Clin. North Am |
| DOI | 10.1016/j.cnur.2009.07.010 |
| ISSN | 1558-1357 |
| Short Title | Nursing, religiosity, and end-of-life care |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/19850187 |
| Accessed | Fri Nov 13 20:13:10 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 19850187 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
| Type | Journal Article |
|---|---|
| Author | Dana Bjarnason |
| Abstract | The influence of religious beliefs and practices at the end of life is underinvestigated. Given nursing's advocacy role and the intimate and personal nature of the dimensions of religiosity and the end of life, exploring the multidimensional interplay of religiosity and end-of-life care is a significant aspect of the nurse-patient relationship and must be better understood. The question that must be faced is whether nurses' own belief systems impinge on or influence patient care, especially for patients who are at the end of life. When nurses understand their own beliefs and respect the religious practices and needs of patients and their families, it deepens the humanistic dimensions of the nurse-patient relationship. |
| Publication | The Nursing Clinics of North America |
| Volume | 44 |
| Issue | 4 |
| Pages | 517-525 |
| Date | Dec 2009 |
| Journal Abbr | Nurs. Clin. North Am |
| DOI | 10.1016/j.cnur.2009.07.010 |
| ISSN | 1558-1357 |
| Short Title | Nursing, religiosity, and end-of-life care |
| URL | http://www.ncbi.nlm.nih.gov.ezproxy.bu.edu/pubmed/19850187 |
| Accessed | Mon Dec 28 12:14:46 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 19850187 |
| Date Added | Thu Sep 29 09:05:21 2011 |
| Modified | Thu Sep 29 09:05:21 2011 |
The influence of religious beliefs and practices at the end of life is underinvestigated. Given nursing’s advocacy role and the intimate and personal nature of the dimensions of religiosity and the end of life, exploring the multidimensional interplay of religiosity and end-of-life care is a significant aspect of the nurse-patient relationship and must be better understood.
| Type | Journal Article |
|---|---|
| Author | Sue Brayne |
| Author | Chris Farnham |
| Author | Peter Fenwick |
| Abstract | Anecdotal evidence suggests that death may be heralded by deathbed phenomena (DBP) such as visions that comfort the dying and prepare them spiritually for death. Medical practitioners have been slow to recognize DBP, and there has been little research into the spiritual effect that DBP have on caregivers or on how these phenomena influence their work. A pilot study looking into the occurrence of DBP was conducted by the palliative care team at Camden Primary Care Trust. Interviews revealed that patients regularly report these phenomena as an important part of their dying process, and that DBP are far broader than the traditional image of an apparition at the end of the bed. Results of the interviews raise concerns about the lack of education or training to help palliative care teams recognize the wider implications of DBP and deal with difficult questions or situations associated with them. Many DBP may go unreported because of this. Results of this pilot study also suggest that DBP are not drug-induced, and that patients would rather talk to nurses than doctors about their experiences. |
| Publication | The American Journal of Hospice & Palliative Care |
| Volume | 23 |
| Issue | 1 |
| Pages | 17-24 |
| Date | 2006 Jan-Feb |
| Journal Abbr | Am J Hosp Palliat Care |
| ISSN | 1049-9091 |
| Short Title | Deathbed phenomena and their effect on a palliative care team |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/16450659 |
| Accessed | Fri Nov 13 15:38:37 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 16450659 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
Anecdotal evidence suggests that death may be heralded by deathbed phenomena (DBP) such as visions that comfort the dying and prepare them spiritually for death. A pilot study looking into the occurrence of DBP was conducted by the palliative care team at Camden Primary Care Trust.
| Type | Journal Article |
|---|---|
| Author | S Burns |
| Abstract | Attention to the spiritual dimension of a person is essential in a holistic approach to hospice care. Although other hospice team members may be involved in matters of faith with patients, chaplains are the primary professionals concerned with the transcendent nature of life and the integrative role that spirituality plays in care for the dying. Understanding spirituality in a person's living and dying requires an understanding of religion and theology. Religion is meant to connect us to a caring community and to give us a place on which to stand--a tradition. Theology is a search for meaning. Spirituality is "the life principle that pervades a person's entire being ... and generates a capacity for transcendent values." The body cannot be touched without the spirit's being affected, and vice versa. Efforts to help patients toward wholeness necessitate helping them accept freely their whole lives. The chaplain is not limited to nor bound by religious language. The needs of the patient should determine the use of prayer or God-talk. Listening is one of the greatest spiritual gifts a chaplain can give a suffering patient. Being a companion is often all the chaplain can do. Pastoral care personnel are also sensitive to the needs of the hospice staff. The chaplain does not so much fulfill a role as represent a perspective based on concern and solicitude for the whole person, the whole family unit, the whole staff. |
| Publication | Health Progress (Saint Louis, Mo.) |
| Volume | 72 |
| Issue | 7 |
| Pages | 48-52, 54 |
| Date | Sep 1991 |
| Journal Abbr | Health Prog |
| ISSN | 0882-1577 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/10112958 |
| Accessed | Thu Nov 12 17:14:30 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 10112958 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
Understanding spirituality in a person’s living and dying requires an understanding of religion and theology. Religion is meant to connect us to a caring community and to give us a place on which to stand--a tradition. Theology is a search for meaning. Spirituality is “the life principle that pervades a person’s entire being ... and generates a capacity for transcendent values.”
| Type | Journal Article |
|---|---|
| Author | Dan Cooper |
| Author | Michael Aherne |
| Author | José Pereira |
| Abstract | The Canadian Hospice Palliative Care Association (2002) identifies spiritual care of the dying and their families as a core service for Hospice Palliative Care programs. Yet, until the Spiritual Care Development Initiative of the Canadian Pallium Project, there was no published literature indicating systematic profiling of occupationally relevant core competencies or competency-based training programs specific to this specialized field of practice. This article describes a Canadian Community of Practice process to develop an occupational analysis-based competency profile for the Professional Hospice Palliative Care Spiritual Care Provider utilizing a modified Developing a Curriculum (DACUM) methodology. Competency profiles are important contributions to the development of curricula to train care providers who are recognized by other professions and by institutions as possessing the requisite theoretical and clinical expertise, particularly in academic tertiary care settings. |
| Publication | Journal of Palliative Medicine |
| Volume | 13 |
| Issue | 7 |
| Pages | 869-875 |
| Date | Jul 2010 |
| Journal Abbr | J Palliat Med |
| DOI | 10.1089/jpm.2009.0429 |
| ISSN | 1557-7740 |
| Accessed | Tue Jul 27 11:48:38 2010 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 20636158 |
| Date Added | Thu Sep 29 09:03:48 2011 |
| Modified | Thu Sep 29 09:03:48 2011 |
| Type | Journal Article |
|---|---|
| Author | Betty Davies |
| Author | Paul Brenner |
| Author | Stacy Orloff |
| Author | Liz Sumner |
| Author | William Worden |
| Abstract | Hospice and palliative care principles mandate clinicIans to provide "total" care to patients and their families. Such care incorporates not only physical, emotional, and psychosocial care, but spiritual care as well. Even though considerable attention has been directed to spiritual issues for adult patients in hospice and palliative care, spirituality in pediatric palliative care has been virtually neglected. The need for guidelines to assess spirituality in this population was identified as a priority issue by members of a subcommittee of the Children's International Project on Children's Palliative/Hospice Services, created under the auspices of the National Hospice Organization. Committee members, based on their clinical, research, and personal experiences, identified several aspects relevant to spirituality in general, and to spirituality in pediatric palliative care in particular, and developed guidelines for clinicians in pediatric palliative care. The purpose of this paper is to share the results of this committee's work and, in particular, to present their guidelines for addressing spiritual issues in children and families in pediatric hospice and palliative care. |
| Publication | Journal of Palliative Care |
| Volume | 18 |
| Issue | 1 |
| Pages | 59-67 |
| Date | 2002 |
| Journal Abbr | J Palliat Care |
| ISSN | 0825-8597 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/12001404 |
| Accessed | Thu Nov 12 21:33:08 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 12001404 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
Even though considerable attention has been directed to spiritual issues for adult patients in hospice and palliative care, spirituality in pediatric palliative care has been virtually neglected. The need for guidelines to assess spirituality in this population was identified as a priority issue by members of a subcommittee of the Children’s International Project on Children’s Palliative/Hospice Services.
| Type | Journal Article |
|---|---|
| Author | A Grey |
| Abstract | This article discusses the concept of spirituality within palliative care. It considers aspects of religion and creativity in relation to spirituality, which may be inter-related as well as being significant in their own right. The nurse's role within the interdisciplinary team is explored. The expertise required as well as the emotional effect on nurses offering spiritual support is described. |
| Publication | Palliative Medicine |
| Volume | 8 |
| Issue | 3 |
| Pages | 215-221 |
| Date | 1994 |
| Journal Abbr | Palliat Med |
| ISSN | 0269-2163 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/7524969 |
| Accessed | Thu Nov 12 17:21:48 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 7524969 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
This article discusses the concept of spirituality within palliative care. It considers aspects of religion and creativity in relation to spirituality, which may be inter-related as well as being significant in their own right. The nurse’s role within the interdisciplinary team is explored. The expertise required as well as the emotional effect on nurses offering spiritual support is described.
| Type | Journal Article |
|---|---|
| Author | Diane M Hampton |
| Author | Dana E Hollis |
| Author | Dudley A Lloyd |
| Author | James Taylor |
| Author | Susan C McMillan |
| Abstract | Spiritual needs, spiritual distress, and spiritual well-being of patients with terminal illnesses can affect their quality of life. The spiritual needs of patients with advanced cancer have not been widely studied. This study assessed the spiritual needs of 90 patients with advanced cancer who were newly admitted to hospice home care. They completed a demographic data form and the Spiritual Needs Inventory shortly after hospice admission. Scores could range from a low of 17 to a high of 85; study scores were 23 to 83. Results showed great variability in spiritual needs. Being with family was the most frequently cited need (80%), and 50% cited prayer as frequently or always a need. The most frequently cited unmet need was attending religious services. Results suggest the importance of a focus on the spiritual more than the religious in providing care to patients at the end of life. |
| Publication | The American Journal of Hospice & Palliative Care |
| Volume | 24 |
| Issue | 1 |
| Pages | 42-48 |
| Date | 2007 Feb-Mar |
| Journal Abbr | Am J Hosp Palliat Care |
| DOI | 10.1177/1049909106295773 |
| ISSN | 1049-9091 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/17347504 |
| Accessed | Fri Nov 13 17:27:49 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 17347504 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
Spiritual needs, spiritual distress, and spiritual well-being of patients with terminal illnesses can affect their quality of life. The spiritual needs of patients with advanced cancer have not been widely studied. This study assessed the spiritual needs of 90 patients with advanced cancer who were newly admitted to hospice home care.
| Type | Journal Article |
|---|---|
| Author | Robert E Krout |
| Abstract | Hospice care seeks to address the diverse needs of terminally ill patients in a number of physical, psychosocial, and spiritual areas. Family members of the patient often are included in the care and services provided by the hospice team, and hospice clinicians face a special challenge when working with families of patients who are imminently dying. When loved ones are anticipating the patient's impending death, they may find it difficult to express feelings, thoughts, and last wishes. Music therapy is a service modality that can help to facilitate such communication between the family and the patient who is actively dying, while also providing a comforting presence. Music therapy as a way to ease communication and sharing between dying patients and their loved ones is discussed in this article. The ways in which music therapy can facilitate a means of release for both patients and family members in an acute care unit of a large US hospice organization are specifically described. Case descriptions illustrate how music therapy functioned to allow five patients and their families to both come together and let go near the time of death. Elements to consider when providing such services to imminently dying patients and their families are discussed. |
| Publication | The American Journal of Hospice & Palliative Care |
| Volume | 20 |
| Issue | 2 |
| Pages | 129-134 |
| Date | 2003 Mar-Apr |
| Journal Abbr | Am J Hosp Palliat Care |
| ISSN | 1049-9091 |
| Short Title | Music therapy with imminently dying hospice patients and their families |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/12693645 |
| Accessed | Thu Nov 12 23:15:46 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 12693645 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
When loved ones are anticipating the patient’s impending death, they may find it difficult to express feelings, thoughts, and last wishes. Music therapy is a service modality that can help to facilitate such communication between the family and the patient who is actively dying, while also providing a comforting presence.
| Type | Journal Article |
|---|---|
| Author | D C Ley |
| Author | I B Corless |
| Abstract | While scientific developments have done much to improve the lot of mankind, especially in the developed world, this progress has been purchased by the division of our understanding of the person into parts. The effect has been that spiritual concerns of the person have not been considered the proper role of the medical community. The number of aged persons who are less reticent to demand discussion of their overall needs as well as the hospice movement itself has had the effect of bringing the spiritual back into consideration by health-care professionals. |
| Publication | Death Studies |
| Volume | 12 |
| Issue | 2 |
| Pages | 101-110 |
| Date | 1988 |
| Journal Abbr | Death Stud |
| ISSN | 0748-1187 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/10302346 |
| Accessed | Thu Nov 12 17:10:48 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 10302346 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
While scientific developments have done much to improve the lot of mankind, especially in the developed world, this progress has been purchased by the division of our understanding of the person into parts. The effect has been that spiritual concerns of the person have not been considered the proper role of the medical community.
| Type | Journal Article |
|---|---|
| Author | R Marrone |
| Abstract | Based in an unfortunate tradition that stretches back in time to Watson's behaviorism and Freud's psychoanalysis, psychology has tended to reject and to pathologize matters of the spirit. In the past 30 years, however, with the advent of what has been termed the cognitive revolution, psychology has greatly expanded the scope of its subject matter. Psychologists and thanatologists have begun to unravel the cognitive underpinnings of our assumptive world and the transformation of those underpinnings in times of crisis and stress. This article examines the cognitive basis of the spiritual experience and the use of cognitive assimilation, accommodation strategies during the process of mourning the death of a loved one, as well as during the process of living our own dying. Of special importance to mental health professionals and clergy, new research on dying, mourning, and spirituality suggests that the specific ways in which people rediscover meaning--such as belief in traditional religious doctrine, the afterlife, reincarnation, philanthropy, or a spiritual order to the universe--may be less important than the process itself. In other words, in the midst of dealing with profound loss in our lives, the ability to reascribe meaning to a changed world through spiritual transformation, religious conversion, or existential change may be more significant than the specific content by which that need is filled. |
| Publication | Death Studies |
| Volume | 23 |
| Issue | 6 |
| Pages | 495-519 |
| Date | Sep 1999 |
| Journal Abbr | Death Stud |
| ISSN | 0748-1187 |
| Short Title | Dying, mourning, and spirituality |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/10558611 |
| Accessed | Thu Nov 12 20:33:15 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 10558611 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
This article examines the cognitive basis of the spiritual experience and the use of cognitive assimilation, accommodation strategies during the process of mourning the death of a loved one, as well as during the process of living our own dying.
| Type | Journal Article |
|---|---|
| Author | M Millison |
| Author | J R Dudley |
| Abstract | This research examines spirituality as an aspect of professional practice. A questionnaire on spirituality was sent in 1991 to the hospice directors in New York, New Jersey, and Pennsylvania. The findings strongly indicate that spirituality is important in the hospice setting and plays a prominent role in the treatment of patients. Also, hospice programs were found to be supportive of the spiritual component of care. The spiritual approaches used by the respondents were the more traditionally religious ones such as listening to the patient talk about God or referring to clergy. Approaches such as meditation or guided imagery, which are not necessarily related to religion, were used less frequently. Clergy in the study placed greater importance on spirituality in hospice work and used more traditionally religious approaches than did non-clergy. While some professional caregivers choose to leave spiritual matters to clergy, the findings reveal that many non-clergy hospice professionals are assisting patients with spiritual concerns. |
| Publication | The Hospice Journal |
| Volume | 8 |
| Issue | 4 |
| Pages | 49-66 |
| Date | 1992 |
| Journal Abbr | Hosp J |
| ISSN | 0742-969X |
| Short Title | Providing spiritual support |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/1302747 |
| Accessed | Thu Nov 12 17:13:27 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 1302747 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
This research examines spirituality as an aspect of professional practice. A questionnaire on spirituality was sent in 1991 to the hospice directors in New York, New Jersey, and Pennsylvania. The findings strongly indicate that spirituality is important in the hospice setting and plays a prominent role in the treatment of patients.
| Type | Journal Article |
|---|---|
| Author | Hisayuki Murata |
| Abstract | OBJECTIVE: In discussing spiritual care of patients with terminal cancer, it is important to clarify the structure of spiritual pain to be evaluated. METHODS: In this article, spiritual pain is defined as "pain caused by extinction of the being and the meaning of the self," and its structure was evaluated according to the three dimensions of the human being, that is, a being founded on temporality, a being in relationship, and a being with autonomy. RESULTS: As a result, spiritual pain of patients with terminal cancer could be described as meaninglessness of life, loss of identity, and worthlessness of living derived from loss of the future, loss of others, and loss of autonomy of a dying individual. SIGNIFICANCE OF RESULTS: On the basis of these understandings, the author deduced principles of spiritual care of terminally ill cancer patients as recovery of the future beyond death, others beyond death, and autonomy toward death in each dimension of the human being. |
| Publication | Palliative & Supportive Care |
| Volume | 1 |
| Issue | 1 |
| Pages | 15-21 |
| Date | Mar 2003 |
| Journal Abbr | Palliat Support Care |
| ISSN | 1478-9515 |
| Short Title | Spiritual pain and its care in patients with terminal cancer |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/16594284 |
| Accessed | Fri Nov 13 15:46:17 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 16594284 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
In this article, spiritual pain is defined as “pain caused by extinction of the being and the meaning of the self,” and its structure was evaluated according to the three dimensions of the human being, that is, a being founded on temporality, a being in relationship, and a being with autonomy. The author deduced principles of spiritual care of terminally ill cancer patients as recovery of the future beyond death, others beyond death, and autonomy toward death in each dimension of the human being.
| Type | Journal Article |
|---|---|
| Author | Gilly Pelleg |
| Author | Ronit D Leichtentritt |
| Abstract | The purpose of the study was to compare spiritual beliefs and practices between nurses and health care social workers based on their involvement with dying patients. Exposure to the dying was identified by two indicators: the percentage of terminally ill patients in the provider's care and the work environment. On the basis of the literature, differences were expected between the two types of professionals and the three degrees of involvement with the dying. Nurses were expected to have a higher spiritual perspective than social workers; and health care providers with high involvement in care for the dying were expected to hold the highest levels of spiritual beliefs. Contrary to expectations, no differences in spirituality were found between nurses and social workers; both groups exhibited medium levels of spirituality. Furthermore, health care providers who were highly involved with dying patients had the lowest spiritual perspectives. Tentative explanations of these unexpected results are presented and discussed. |
| Publication | Omega |
| Volume | 59 |
| Issue | 3 |
| Pages | 239-252 |
| Date | 2009 |
| Journal Abbr | Omega (Westport) |
| ISSN | 0030-2228 |
| Short Title | Spiritual beliefs among Israeli nurses and social workers |
| Accessed | Tue Feb 22 18:38:43 2011 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 19791519 |
| Date Added | Thu Sep 29 09:07:00 2011 |
| Modified | Thu Sep 29 09:07:00 2011 |
| Type | Journal Article |
|---|---|
| Author | Christina M Puchalski |
| Publication | Journal of Palliative Medicine |
| Volume | 5 |
| Issue | 2 |
| Pages | 289-294 |
| Date | Apr 2002 |
| Journal Abbr | J Palliat Med |
| DOI | 10.1089/109662102753641287 |
| ISSN | 1096-6218 |
| Short Title | Spirituality and end-of-life care |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/12006231 |
| Accessed | Thu Nov 12 21:32:35 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 12006231 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
| Type | Journal Article |
|---|---|
| Author | Larry Scherwitz |
| Author | Marcie Pullman |
| Author | Pamela McHenry |
| Author | Billy Gao |
| Author | Frank Ostaseski |
| Abstract | BACKGROUND: Inspired by a 2,500-year-old Buddhist tradition, the Zen Hospice Project (ZHP) provides residential hospice care, volunteer programs, and educational efforts that cultivate wisdom and compassion in service. OBJECTIVE: The present study was designed to understand how being with dying hospice residents affects hospice volunteers well-being and the role of spiritual practice in ameliorating the fear of death. DESIGN: A one-year longitudinal study of two volunteer cohorts (N = 24 and N = 22) with repeated measures of spiritual practice, well-being, and hospice performance during one-year service as volunteers. SETTING: The Zen Hospice Guest House and Laguna Honda Residential Hospital of San Francisco, CA. PARTICIPANTS: All 46 individuals who became ZHP volunteers during two years. INTERVENTIONS: A 40-hour training program for beginning hospice volunteers stressing compassion, equanimity, mindfulness, and practical bedside care; a one-year caregiver assignment five hours per week; and monthly group meeting. MAIN OUTCOME MEASURES: Self-report FACIT spiritual well-being, general well-being, self-transcendence scale, and a volunteer coordinator-rated ZHP performance scale. RESULTS: The volunteers had a high level of self-care and well-being at baseline and maintained both throughout the year; they increased compassion and decreased fear of death. Those (n = 20) practicing yoga were found to have consistently lower fear of death than the group average (P = .04, P = .008, respectively). All rated the training and program highly, and 63% continued to volunteer after the first year's commitment. The results suggest that this approach to training and supporting hospice volunteers fosters emotional well-being and spiritual growth. |
| Publication | Explore (New York, N.Y.) |
| Volume | 2 |
| Issue | 4 |
| Pages | 304-313 |
| Date | 2006 Jul-Aug |
| Journal Abbr | Explore (NY) |
| DOI | 10.1016/j.explore.2006.04.001 |
| ISSN | 1550-8307 |
| Short Title | A contemplative care approach to training and supporting hospice volunteers |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/16846818 |
| Accessed | Fri Nov 13 16:40:10 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 16846818 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
The present study was designed to understand how being with dying hospice residents affects hospice volunteers well-being and the role of spiritual practice in ameliorating the fear of death. Results: The volunteers had a high level of self-care and well-being at baseline and maintained both throughout the year; they increased compassion and decreased fear of death.
| Type | Journal Article |
|---|---|
| Author | K L Soeken |
| Author | V J Carson |
| Abstract | The steps of the nursing process apply to needs of the spirit as well as body and mind. Several nurses have provided guidelines for assessing spiritual needs. Stoll, for example, considers four areas of concern: the person's concept of God; source of strength and hope; significance of religious practices and rituals; and perceived relationship between spiritual beliefs and state of health. In approaching the patient about these four areas, it is important for the nurse to clearly articulate the purpose in seeking such information. For instance, a nurse might explain to a patient that research has demonstrated the positive relationship of spiritual concerns to a patient's ability to cope with chronic illness. Because the nurse is interested in assisting the patient to identify, strengthen, and develop a variety of coping strategies, spiritually related data are relevant to the patient's care. Having collected data from the patients, a nursing diagnosis can be made. Spiritual concerns, spiritual distress, and spiritual despair have been included in the accepted classification system. Meeting the spiritual needs of patients can be uncomfortable for the nurse. Several reasons for such discomfort include embarrassment, the belief that it is not the nurse's role, lack of training, and the lack of own spiritual resources. Experience with an elective course in spirituality for undergraduate nursing students would support the value of offering training. Discussing God-related issues can assist a health care professional to clarify a personal spiritual position.(ABSTRACT TRUNCATED AT 250 WORDS) |
| Publication | The Nursing Clinics of North America |
| Volume | 22 |
| Issue | 3 |
| Pages | 603-611 |
| Date | Sep 1987 |
| Journal Abbr | Nurs. Clin. North Am |
| ISSN | 0029-6465 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/3649794 |
| Accessed | Thu Nov 12 17:10:33 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 3649794 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
| Type | Journal Article |
|---|---|
| Author | E J Taylor |
| Author | M Amenta |
| Abstract | Because attitudes and beliefs about spiritual care have been linked with spiritual caregiving practices in previous research among non-hospice nurses, and because little is known about hospice nurses' attitudes and beliefs about spiritual care, this study explored such attitudes and beliefs among hospice nurses. Data were obtained from 641 Hospice Nurses Association members who completed the Spiritual Care Perspectives Survey and a demographic form. While respondents rather uniformly agreed that patients had spiritual needs and that it was appropriate for nurses to attend to such needs, attitudes about how a nurse should relate to patients' spirituality were variable. Education and indicators reflecting personal religiosity were associated with these hospice nurses' attitudes and beliefs about spiritual care. |
| Publication | The American Journal of Hospice & Palliative Care |
| Volume | 11 |
| Issue | 6 |
| Pages | 28-35 |
| Date | 1994 Nov-Dec |
| Journal Abbr | Am J Hosp Palliat Care |
| ISSN | 1049-9091 |
| Short Title | Midwifery to the soul while the body dies |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/7893565 |
| Accessed | Thu Nov 12 17:27:07 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 7893565 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
Because attitudes and beliefs about spiritual care have been linked with spiritual caregiving practices in previous research among non-hospice nurses, and because little is known about hospice nurses’ attitudes and beliefs about spiritual care, this study explored such attitudes and beliefs among hospice nurses. While respondents rather uniformly agreed that patients had spiritual needs and that it was appropriate for nurses to attend to such needs, attitudes about how a nurse should relate to patients’ spirituality were variable.
| Type | Journal Article |
|---|---|
| Author | J E Thomson |
| Abstract | There is an increasing awareness of, and interest in the relationship between spirituality and health. This research examines spiritual well-being as one of six components of hospice patients' overall quality of life. Patients admitted over a four-month period were surveyed, using the Functional Assessment of Cancer Therapy scale (FACT-G), at admission, one month later, three months later, and six months later. Data showed spiritual well-being to be an important contributor to overall quality of life. The article concludes by advocating that providing spiritual care to hospice patients makes good business sense. |
| Publication | The Hospice Journal |
| Volume | 15 |
| Issue | 2 |
| Pages | 13-27 |
| Date | 2000 |
| Journal Abbr | Hosp J |
| ISSN | 0742-969X |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/11271157 |
| Accessed | Thu Nov 12 20:55:21 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 11271157 |
| Date Added | Sat Oct 1 15:44:04 2011 |
| Modified | Sat Oct 1 15:44:04 2011 |
This research examines spiritual well-being as one of six components of hospice patients’ overall quality of life. Patients admitted over a four-month period were surveyed, using the Functional Assessment of Cancer Therapy scale (FACT-G), at admission, one month later, three months later, and six months later. Data showed spiritual well-being to be an important contributor to overall quality of life.