| Type | Journal Article |
|---|---|
| Author | K Faull |
| Author | M D Hills |
| Abstract | PURPOSE: To assess the clinical reliability and validity of a holistic health measure, the QE Health Scale (QEHS), for use with people with physical disabilities. METHOD: A test-retest design saw the QEHS administered and compared with established measures of health at admission and discharge from three-week inpatient rehabilitation programmes. Data was analysed by factor and correlation analysis. Clinician-reported credibility and usefulness of the theoretical basis of the QEHS, the QEHS itself, and Patient Profiles derived from the QEHS were also used to evaluate clinical validity. RESULTS: The QEHS was judged to possess satisfactory reliability and validity. CONCLUSION: The QEHS is a clinically reliable, valid, credible and useful holistic health instrument to facilitate client-centred therapeutic interventions, inform decision-making and evaluate outcomes for people with physical disabilities. |
| Publication | Disability and Rehabilitation |
| Volume | 29 |
| Issue | 9 |
| Pages | 701-716 |
| Date | May 15, 2007 |
| Journal Abbr | Disabil Rehabil |
| DOI | 10.1080/09638280600926611 |
| ISSN | 0963-8288 |
| Short Title | The QE Health Scale (QEHS) |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/17453992 |
| Accessed | Fri Nov 13 17:38:28 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 17453992 |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
Purpose: To assess the clinical reliability and validity of a holistic health measure, the QE Health Scale (QEHS), for use with people with physical disabilities. Results: The QEHS was judged to possess satisfactory reliability and validity.
| Type | Journal Article |
|---|---|
| Author | K Faull |
| Author | M D Hills |
| Abstract | PURPOSE: To present a clinical commentary on the relationship of spirituality to healthcare for those with chronic physical conditions. METHOD: A spiritually based theory of self-identity was presented, based on selected literature to identify the process of health attainment for those with chronic conditions. The resultant Health Change Process Theory was then discussed in relation to relevant empirical research and the implications for rehabilitation practice were outlined. RESULTS: The development of a resilient, intrinsic, spiritually based concept of self was found to be pivotal to health outcomes in rehabilitation. This was then incorporated within a Health Change Process Theory to explain and predict the course followed by people with chronic disorders to achieve health. CONCLUSION: The Health Change Process Theory provides an inclusive framework within which acute and chronic rehabilitation healthcare can be merged to maximise health outcomes. Nevertheless, a need remains to develop a quantitative measure of individual holistic health, based on this theory, to facilitate its use in rehabilitation practice. This paper forwards an explanation for the process that people experiencing chronic physical disabilities undergo as they achieve health. A concept of self that identifies the spiritual core as the component that determines the constancy and continuity of self as a whole which is necessary for health is presented as the basis of the rehabilitative health process. |
| Publication | Disability and Rehabilitation |
| Volume | 28 |
| Issue | 11 |
| Pages | 729-740 |
| Date | Jun 15, 2006 |
| Journal Abbr | Disabil Rehabil |
| DOI | 10.1080/09638280500265946 |
| ISSN | 0963-8288 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/16809216 |
| Accessed | Fri Nov 13 16:38:48 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 16809216 |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
Purpose: To present a clinical commentary on the relationship of spirituality to healthcare for those with chronic physical conditions. Results: The development of a resilient, intrinsic, spiritually based concept of self was found to be pivotal to health outcomes in rehabilitation.
| Type | Journal Article |
|---|---|
| Author | K Faull |
| Author | M D Hills |
| Author | G Cochrane |
| Author | J Gray |
| Author | M Hunt |
| Author | C McKenzie |
| Author | L Winter |
| Abstract | PURPOSE: To identify key determinants of health and the process of health attainment for people with musculoskeletal disabilities. METHOD: Focus groups of people with musculoskeletal disorders, including 30 members and their five trained facilitators, provided data. Discussed were 'What is health for you?' and 'What has helped, or would help you achieve this health?' Delphi-structured analysis identified health themes and a health process model was developed with the facilitators comprising the expert panel. RESULTS: Health was perceived as centred on relationships that required a spiritual awareness for a strong and resilient identity. The Self Attributes Model developed portrays the processes perceived to be required for health. CONCLUSIONS: Although physical, social and psychological interventions are essential aspects of health intervention, by themselves they are not sufficient. Also required for health is a strong resilient self resulting from interaction and connection with other people and the natural world. Moreover, development of such an identity requires a spiritual world-view comprising an acknowledgement of the essence of self and focus upon the nature of the connection of this essence with all other aspects of life. Further research is required to advance understanding of the process by which this occurs for people with chronic disorders. |
| Publication | Disability and Rehabilitation |
| Volume | 26 |
| Issue | 3 |
| Pages | 129-144 |
| Date | Feb 4, 2004 |
| Journal Abbr | Disabil Rehabil |
| DOI | 10.1080/09595230020029365 |
| ISSN | 0963-8288 |
| Short Title | Investigation of health perspectives of those with physical disabilities |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/14754624 |
| Accessed | Fri Nov 13 12:44:21 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 14754624 |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
Purpose: To identify key determinants of health and the process of health attainment for people with musculoskeletal disabilities. Results: Health was perceived as centred on relationships that required a spiritual awareness for a strong and resilient identity.
| Type | Journal Article |
|---|---|
| Author | E.L. Idler |
| Author | S.V. Kasl |
| Abstract | Does religious involvement influence changes in physical health? We perform a longitudinal analysis of the effect of religious participation on functioning over a 12-year follow-up period, in a large, prospective, representative sample of elderly persons from New Haven, Connecticut, a religiously diverse community. To examine the possibility that disability or changes in disability may be affecting religious involvement, we perform a second longitudinal analysis of changes in religious practices. Finally, we ask whether psychosocial correlates explain the effect of religious involvement on disability. Findings are (a) that attendance at services is a strong predictor of better functioning, even when intermediate changes in functioning are included, (b) that health practices, social ties, and indicators of well-being reduce, but do not eliminate these effects, and (c) that disability has minimal effects on subsequent attendance. The findings illustrate the short- and long-term importance of religious participation to the health and well-being of elderly people, and suggest a particular significance for religious participation in the lives of disabled elders. |
| Publication | The Journals of Gerontology |
| Volume | 52 |
| Issue | 6 |
| Pages | S306-316 |
| Date | Nov. 1997 |
| Series | B |
| Series Title | Psychological Sciences and Social Sciences |
| Journal Abbr | J Gerontol B Psychol Sci Soc Sci |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/9403524 |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
Findings are (a) that attendance at services is a strong predictor of better functioning, even when intermediate changes in functioning are included, (b) that health practices, social ties, and indicators of well-being reduce, but do not eliminate these effects, and (c) that disability has minimal effects on subsequent attendance.
| Type | Journal Article |
|---|---|
| Author | EL Idler |
| Author | SV Kasl |
| Publication | J Gerontol B Psychol Sci Soc Sci |
| Volume | 52 |
| Issue | 6 |
| Pages | S294-305 |
| Date | November 1, 1997 |
| Short Title | Religion among disabled and nondisabled persons I |
| URL | http://psychsoc.gerontologyjournals.org/cgi/content/abstract/52/6/S294 |
| Accessed | Tue Nov 10 19:53:26 2009 |
| Library Catalog | HighWire |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
This article and its second part explore questions such as: What is the relationship between religious involvement and functional disability among elderly people? Is being disabled different for those who frequently attend religious services? Does religious involvement have an effect on subsequent change in disability? The authors found (a) that religious involvement in 1982 is tied to a broad array of behavioral and psychosocial resources, (b) that these resources are associated primarily with attendance at services, and not with subjective feelings of religiousness, and (c) that some of these associations are especially pronounced among disabled respondents.
| Type | Journal Article |
|---|---|
| Author | Heftziba Lifshitz |
| Author | Yaacov J. Katz |
| Abstract | This study compared behavioral, cognitive, and motivational components of religiosity among 54 Jewish adolescents (aged 13–21 years) and 35 adults (aged 30–60 years) with intellectual disability (ID) (IQ = 40–69). A special questionnaire was constructed based on several previous studies by other authors. A different pattern was found between age groups. The adolescents fulfilled Jewish commandments to a greater extent than the adults. Social psychology theories regarding religion change/stability over the lifecycle can serve as an explanation for these findings. The cognitive component was measured using a Piagetean-type scale. The scores in prayer efficacy and providence of God were significantly higher among the adults than among the adolescents. The adults also exhibited more mature motives of fulfilling commandments (dependence on God) than the adolescents. Regression analysis indicated that among the adolescents, mental age contributed to the explained variance of the behavioral and cognitive components, while among the adults chronological age contributed to the explained variance of these components. (PsycINFO Database Record (c) 2010 APA, all rights reserved) (journal abstract) |
| Publication | European Journal of Special Needs Education |
| Volume | 24 |
| Issue | 2 |
| Pages | 183-201 |
| Date | May 2009 |
| DOI | 10.1080/08856250902793651 |
| ISSN | 0885-6257 |
| Short Title | Religious concepts among individuals with intellectual disability |
| Library Catalog | EBSCOhost |
| Date Added | Thu Sep 29 09:06:18 2011 |
| Modified | Thu Sep 29 09:06:18 2011 |
This study compared behavioural, cognitive, and motivational components of religiosity among 54 Jewish adolescents (aged 13–21 years) and 35 adults (aged 30–60 years) with intellectual disability (ID) (IQ=40–69). A special questionnaire was constructed which revealed a different pattern was found between age groups. The adolescents fulfilled Jewish commandments to a greater extent than the adults. The authors look at social psychology theories to serve as an explanation for these findings.
| Type | Journal Article |
|---|---|
| Author | Irmo Marini |
| Author | Noreen M. Glover-Graf |
| Abstract | A total of 157 persons with spinal cord injury completed the Spirituality and Spinal Cord Injury Survey in relation to their spiritual and/or religious attitudes, beliefs, and practices in terms of adapting to their disability. Factor analysis accounting for 69% of the variance revealed four factors related to Spiritual Help and Improvement (36%), Spiritual Decline (22%), Punishment/Atonement (6%), and Body/Mind Improvements (5%). Participants were further classified by time since injury, which statistically indicated that some individuals tend to become more focused on religious or spiritual practices and beliefs regarding cure soon after injury; however, these behaviors and beliefs tend to dissipate over time. The majority of participants expressed overall satisfaction with God or a Spiritual Power (G/SP) and that G/SP helped them cope, gave them meaning, and was a source of happiness in their lives. Implications for rehabilitation counselors and educators are discussed. [ABSTRACT FROM PUBLISHER] |
| Publication | Rehabilitation Counseling Bulletin |
| Volume | 54 |
| Issue | 2 |
| Pages | 82-92 |
| Date | 01 January 2011 |
| DOI | 10.1177/0034355210368868 |
| ISSN | 00343552 |
| Short Title | Religiosity and Spirituality Among Persons With Spinal Cord Injury |
| Library Catalog | EBSCOhost |
| Date Added | Thu Sep 29 08:57:35 2011 |
| Modified | Thu Sep 29 08:57:35 2011 |
A total of 157 persons with spinal cord injury completed the Spirituality and Spinal Cord Injury Survey in relation to their spiritual and/or religious attitudes, beliefs, and practices in terms of adapting to their disability. The majority of participants expressed overall satisfaction with God or a Spiritual Power (G/SP) and that G/SP helped them cope, gave them meaning, and was a source of happiness in their lives. Implications for rehabilitation counselors and educators are discussed.
| Type | Journal Article |
|---|---|
| Author | Marsha Michie |
| Author | Debra Skinner |
| Abstract | This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. In interviews, a majority of women combined narratives of religious practice with illness narratives, interpreting their children's disabilities within a religious framework. The authors articulate a reconciliation narrative that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. |
| Publication | Intellectual and Developmental Disabilities |
| Volume | 48 |
| Issue | 2 |
| Pages | 99-111 |
| Date | 2010 |
| Journal Abbr | Intellect Dev Disabil |
| DOI | 10.1352/1934-9556-48.2.99 |
| ISSN | 1934-9491 |
| URL | http://aamr.allenpress.com/aamronline/? request=get-abstract&… |
| Date Added | Thu Sep 29 09:04:35 2011 |
| Modified | Thu Sep 29 09:04:35 2011 |
This article examines the place of religion in the narratives of mothers of children with fragile X syndrome. The authors found that a majority of women interpreted their children's disabilities within a religious framework. Informed by Arthur Frank's (1995) concept of “wounded storytellers,” the authors articulate a reconciliation narrative that mothers commonly used to describe their transition from viewing disability as a burden or challenge to seeing it as a blessing, or as a part of God's purpose or plan for their lives. The authors discuss the significance of narrative for better understanding religious perspectives on disability and conclude with the implications of these findings for practitioners and future research.
| Type | Journal Article |
|---|---|
| Author | Emily K Schulz |
| Abstract | PURPOSE: To examine the experiences of people with disabilities regarding their spirituality and its meaning for them. This study asked: What are the differences in the meaning of spirituality in the lives of individuals with childhood onset disabilities when compared to those with adult onset disabilities? METHOD: This qualitative study involved semi-structured individual interviews of 12 adults, six with childhood onset and six with adult onset disabilities. Member checking of both transcribed data and open coding was done to ensure trustworthiness. Data was analyzed using open, axial, and selective coding. RESULTS: Findings suggested that the two groups held different perceptions about the meaning of spirituality. For childhood onset participants, two categories of 'connecting and expressing for purpose and meaning in life', and 'disability as a vehicle to discover god's purpose' were generated. For adult onset participants, two categories of 'connecting and expressing through feelings and actions', and 'disability as a catalyst for spiritual awakening' were derived from the data. CONCLUSIONS: Individuals with childhood and adult onset disabilities perceive and experience spirituality differently. Therefore, different approaches to using spirituality in practice need to be employed for the two groups. Suggestions are provided for incorporating spirituality into occupational therapy practice. |
| Publication | Disability and Rehabilitation |
| Volume | 27 |
| Issue | 21 |
| Pages | 1283-1295 |
| Date | Nov 15, 2005 |
| Journal Abbr | Disabil Rehabil |
| DOI | 10.1080/09638280500076319 |
| ISSN | 0963-8288 |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/16298931 |
| Accessed | Fri Nov 13 15:30:34 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 16298931 |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
Purpose: To examine the experiences of people with disabilities regarding their spirituality and its meaning for them. Conclusions: Individuals with childhood and adult onset disabilities perceive and experience spirituality differently.
| Type | Journal Article |
|---|---|
| Author | Linda L Treloar |
| Abstract | AIMS: This paper reports the findings of a qualitative interpretive study that explored how people with disabilities and family members use their spiritual beliefs to establish meaning for disability, and to respond to the challenges of lived experience with disability. The participants' perceptions of the evangelical Christian church's influence on their spiritual experiences related to disability suggest recommendations for improved integration by the church. Applications are drawn for helping professionals and religious leaders who provide holistic care. BACKGROUND/RATIONALE: Although there is a well-established literature on coping in families with disabled children, little is known about how people use spiritual beliefs to establish meaning for and respond to life with disability. Even less is known about how people with a particular set of shared spiritual beliefs make meaning for lived experience with disability. DESIGN/METHODS: The author interviewed 30 persons, comprising two major groups: 13 parents of children with mixed developmental disabilities and nine adults with physical disabilities. Predominantly white, the participants lived in a south-western metropolitan area in the United States of America (USA) in 1998. FINDINGS: Trial or difficulty contributed to spiritual challenge, the breaking of self, reliance on God, and strengthened faith in God. The participants chose to live with thankfulness and joy despite difficulties common to experience with disability. The participants' spiritual beliefs stabilized their lives, providing meaning for the experience of disability, assistance with coping and other benefits. The participants' recommendations include increased assistance by the church in promoting theological understanding of disability, and religious support using a continuing model of caring. CONCLUSIONS: Although the study design limits the generalizability of the findings, applications can be drawn for helping professionals and religious leaders who provide holistic care |
| Publication | Journal of Advanced Nursing |
| Volume | 40 |
| Issue | 5 |
| Pages | 594-603 |
| Date | Dec 2002 |
| Journal Abbr | J Adv Nurs |
| ISSN | 0309-2402 |
| Short Title | Disability, spiritual beliefs and the church |
| URL | http://www.ncbi.nlm.nih.gov/pubmed/12437609 |
| Accessed | Thu Nov 12 22:56:50 2009 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 12437609 |
| Date Added | Sat Oct 1 16:55:15 2011 |
| Modified | Sat Oct 1 16:55:15 2011 |
This paper reports the findings of a qualitative interpretive study that explored how people with disabilities and family members use their spiritual beliefs to establish meaning for disability, and to respond to the challenges of lived experience with disability.
| Type | Journal Article |
|---|---|
| Author | Kaili C Zhang |
| Abstract | Although researchers in the health and social care professions have suggested that spirituality is a fundamental human need and a human right that is a necessary component of both mental and physical health (e.g., George, Ellison, & Larson, 2000), spirituality is still a neglected area and underused resource in special education. Little work has focused directly on the significance of spirituality in the lives of students with disabilities, and there are few, if any, explicit references to the spiritual development in the students. In addition, teachers often have difficulties learning how best to understand and enable the spiritual development of students with disabilities (Foster, 2000). In this perspective, I address issues related to disability and spirituality, consider the impact of spirituality on children with disabilities, and suggest some practical strategies teachers can use to help foster the spiritual development of students with disabilities. I propose that spirituality has the power to foster the holistic development of children with disabilities and to give them a sense of identify and purpose in life. |
| Publication | Intellectual and Developmental Disabilities |
| Volume | 48 |
| Issue | 4 |
| Pages | 299-302 |
| Date | Aug 2010 |
| Journal Abbr | Intellect Dev Disabil |
| DOI | 10.1352/1934-9556-48.4.299 |
| ISSN | 1934-9491 |
| Short Title | Spirituality and disabilities |
| Accessed | Mon Aug 30 16:54:43 2010 |
| Library Catalog | NCBI PubMed |
| Extra | PMID: 20722483 |
| Date Added | Thu Sep 29 09:03:07 2011 |
| Modified | Thu Sep 29 09:03:07 2011 |
This article discusses how spirituality makes a presence in a classroom for special education students.