
Treatments
and Therapies for Mitochondrial Disorders – Questionnaire
Thank you for your
interest in participating in this study. This is a voluntary research study
that investigates the treatments and therapies that individuals use to treat
the symptoms of mitochondrial disorders.
If you are:
18 years of age or
older
English-speaking
AND
Have a medical
diagnosis of a mitochondrial disorder
OR
Have a child or ward currently
living with a medical diagnosis of a mitochondrial disorder
Please click on the
link below in order to learn more about the research study and to have the
opportunity to participate by completing the questionnaire
Mitochondrial Treatment Survey
You may learn more
about your rights as a research participant by calling the Office of the Boston
University Medical Center at (617) 638-7207.
If you have any questions regarding this questionnaire or research study, please contact Laura Fuerstman at lfuerst@bu.edu, or Maureen Flynn at (617) 638-5908 or gc4dna@bu.edu.