Boston University                                             

 

 

Treatments and Therapies for Mitochondrial Disorders – Questionnaire

 

Thank you for your interest in participating in this study. This is a voluntary research study that investigates the treatments and therapies that individuals use to treat the symptoms of mitochondrial disorders.

 

If you are:

18 years of age or older

English-speaking

AND

Have a medical diagnosis of a mitochondrial disorder

OR

Have a child or ward currently living with a medical diagnosis of a mitochondrial disorder

 

Please click on the link below in order to learn more about the research study and to have the opportunity to participate by completing the questionnaire

 

Mitochondrial Treatment Survey

 

You may learn more about your rights as a research participant by calling the Office of the Boston University Medical Center at (617) 638-7207.

 

If you have any questions regarding this questionnaire or research study, please contact Laura Fuerstman at lfuerst@bu.edu, or Maureen Flynn at (617) 638-5908 or gc4dna@bu.edu.