Boston UniversityEllen S. Cohn, ScD, OTR/L, FAOTA
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Dr. Cohn has conducted numerous qualitative studies of parents' perspectives of living with and parenting children with a range of diagnostic conditions. Dr. Cohn's current research, funded by the National Institute of Health, is exploring parents' culturally based explanatory models of health, illness and medicine among African-American, Latino and white children with persistent asthma. The research focuses on missed opportunities in patient-provider communication present in many cross-cultural interactions, and how miscommunication may contribute to the differences in care and outcomes that have been observed among minorities. The research also focuses on understanding how families negotiate the occupation of parenting children with a chronic condition such as asthma. She also has an interest in children and families' perspectives of personal, contextual and occupational characteristics that support or inhibit successful social participation in school, home, and in the community. She has published several papers on broadening the focus of occupational therapy intervention to include family perspectives in all aspects of service delivery. Related areas of interest focus on understanding outcomes of occupational therapy using sensory integration approaches.

 

Specific projects include:

     Culture and Communication in Hypertension Management

     Conceptualizations of Friendships in Adolescents with Autism Spectrum Disorders

 

Culture and Communication in Hypertension Management

Prof. Ellen Cohn is an investigator in a large study of patients with uncontrolled hypertension being conducted at two large Veterans Medical Centers. The goal of the project is to gain a better understanding of patients’ and providers’ explanatory models of hypertension, its treatment and management.  Individuals with hypertension face the challenges of trying to successfully manage their conditions through medication and lifestyle modifications. The research team developed a conceptual model of to specify four domains that affected the actions patients took to manage their hypertension:

1.      Explanatory models – beliefs that individuals have regarding the cause, mechanisms  & course of illness, and effects of treatment;

2.      Planned action –patients’ reported plans and motivations to control their hypertension;

3.      Daily lived experience – patients’ context, routines and other health problems that affect hypertension management; and

4.      Relationship with provider – including patients’ attitudes towards their provider and provider communication.

A breakdown in one or more of these areas was found to interfere with the patients’ ability to engage in accepted hypertension control behaviors such as watching their diet, exercising, or taking prescribed medications. The research team has presented the study findings at numerous professional conferences and is in the process of preparing manuscripts for publication.

 

Conceptualizations of Friendships in Adolescents with Autism Spectrum Disorders

Drs.  Ellen Cohn and Gael Orsmond are currently collaborating on a mixed-method study examining how adolescents with an ASD understand and perceive friendships.  We examine the social experiences of adolescents with an ASD during their discretionary time and how they perceive their friendships, including the barriers and facilitators to friendships.   Using time use methodology and visual narratives, in which the adolescents are given video cameras to record their experiences, we explore their understanding of social experiences.   This pilot study was study was funded by the Dudley Allen Research Fund at Boston University.

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Boston University College of Health & Rehabilitation Sciences: Sargent College

Dept of Occupational Therapy

635 Commonwealth Ave, Boston, MA  02215 (617-353-2000)

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July 1, 2009